1.
General Support for the Family
1a)
Which parts of the Children and Young People’s Service do
you use?
The
Cottage/Treetops: 14
Playschemes/out of school hours schemes: 21
The Nursery/Therapy: 10
Domiciliary: 12
Family Link: 8
1b)
Do you think your child enjoys the time they spend using the service?
Yes: 44
No: 1
Comments
“My son looks forward so much to seeing his helpers.”
“We have had a lot of strange behaviours. However, I know
she loves going to Treetops.”
“She adores Jackie and really looks forward to her time out
with her.”
“As he leaves the house with his carers he doesn’t give
me even a backward glance!!”
“He loves the playschemes, he comes home exhausted and happy.”
“She has improved fantastically since having physio with Anna.”
“The staff always try very hard to meet the needs of the children
who attend the service. Everyone is always friendly and always address
my child directly.”
“I have already fed back my comments on the holiday playscheme
at a meeting at White Lodge. I think more activities which are non-creative
such as sensory are needed.”
“She has a great time when she goes to the Little Stars Playgroup!”
“He thoroughly enjoys both Shakers and his time with Helen
and Zulu. He looks
forward to it very much.”
“Happy for me to leave him.”
“Would use the Playscheme Link Leisure if the system was more
organised and had a nurse present.”
“My child usually comes back smiling and ‘chatty’,
having had an enjoyable day doing fun activities.”
“They provide fantastic care and support for all children.”
“My daughter does not like the physiotherapy purely because
of her personality.”
1c) i) Are you satisfied with the service your family receives?
Yes:
44
No: 1
Comments:
“Yes, very much apart from more one-to-one care and more time
outside to help calm [her].”
1c)
ii) How would you rate the service provided?
Excellent:
25
Very good: 16
Good: 3
Satisfactory: 1
Poor:
0
Comments
“Excellent
helpers, have never let me down and very keen and efficient.”
“With both domiciliary and Family Link and the holiday scheme
I know that he is
receiving the best of care.”
“The staff are fantastic, and the whole place has a good feel
to it.”
“Always friendly and welcoming.”
“We only get one day a month and we are trying, through Sally
Riches, to obtain a few more which would be very beneficial to the
rest of my family.”
“The only down side is waiting for dates for respite –
these seem to get later and later.”
“Yellow Nursery books help you see what your child has been
up to.”
“I am not happy about the entrance doors to White Lodge Treetops
– my child escaped! I am not happy with the small change made
since i.e. notices put up about waiting for door to close.”
“Not enough staff to meet children’s needs. No communication
between different
departments. Staff do not challenge children enough, need to try
to bring them on more.”
1d) How do you rate the feedback about your child?
Excellent:
13
Very good: 20
Good: 7
Satisfactory: 5
Poor: 0
Comments
“He has
a contact book/sheet letting me know how he has been.”
“New Green book is nice.”
“Mainly good although this does depend on which member of
staff is doing the handover.”
“I would appreciate more feedback as to exactly what he has
done and what he enjoyed or didn’t enjoy.”
“I think perhaps more things could be mentioned about your
child instead of leaving to TAC meeting …when something could
have been happening for a couple of months.”
“Improving with the pre-printed sheets.”
“Good idea about booklets.”
“I prefer a written comment to the pre-printed book.”
“Yellow book is good idea but often not filled fully.”
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2.
Staff
2a)
i) Do you know who your child’s Prime Contact is?
Yes: 24
No: 20
No response: 1
2a)
ii) Can you describe their role?
Comments
“I am assuming that this is Helen and Mary from Domiciliary
(as this is who I always contact) – Helen is part-time so
all is cc’d to Mary.”
“Overseeing her care.”
“Seems to be the person who liaises with other professionals
within White Lodge.”
“Physiotherapist.” x 3
“First contact.”
“They are the person who we refer to initially should we have
a query or concern regarding him and Treetops, etc.”
“They are responsible for co-ordinating my child’s needs.”
“Initial contact and organiser.”
“I know who the Key Worker is.”
“Present at reviews. Keeps “All About Me” up to
date.”
“Mary Threakall.”
“Co-ordinate hours and dates and sort out any problems or
changes that may arise.”
“Liaison between us (parents) and Link Carers – if we
needed it, checking out and maintaining the statutory, formal side
of things.”
“Not sure.”
“For playschemes I assume this is Gill Tuck? For Treetops
he hasn’t started yet so I am still learning who does what.”
“The first port of call for any queries we may have at all
about him and the services he is getting or worries we may have.”
“Playing, keeping him happy, dressing him, feeding him, changing
his nappy, giving him a shower.”
“Not sure if this applies to playschemes.”
“Yes.”
“Did not know he had one.”
“Key worker – often not present.”
2a)
iii) Do you know the difference between a Prime Contact and a Key
Worker?
Yes:
11
No: 32
No response: 2
Comments:
“is there a difference? Did not know there was one!”
“Actually thought they were the same person, so apologise
if we’ve burdened our Key Worker.”
“Key Worker is Nursery contact.”
“Oh dear – confused now – I thought that Helen
was the Prime Contact, but maybe she is the Key Worker?”
“I know who his Key Worker will be at Treetops.”
“Yes, I think.”
2b) Do you believe the staff/link carers understand your
child’s needs and are adequately trained to deal with them?
Yes: 44
No: 1
Comments
“They are given all the relevant information on my child and
I think they tend to go by that.”
“Staff need to challenge children more in order to bring them
on. Problem solving often left for parents, who would appreciate
positive suggestion from staff.”
“Most of the time.”
“Although occasionally haven’t changed son’s incontinence
pads as often as they should have.”
“At present yes, but he goes back on oxygen – I will
have nowhere in place for respite as Treetops still has no trained
nurse on board.”
“Still to experience Treetops.”
“They are slow to be trained using emergency medication eg
rectal diazepam/buccal midazolam.”
“They know her very well and understand her needs.”
“But, it is sometimes hard to see - if we make appointments
with physiotherapist her guidance is not followed in the nursery.”
“Our link carers are THE BEST!!! We are so lucky they love
our daughter so much and are so brilliant with her.”
“Particularly the regular domiciliary workers.”
“But do need to be more aware of ‘extreme’ behaviours
and how to deal with them.”
“Very good understanding of my son’s needs and always
listens to what I advise.”
“Yes, when he had a major seizure just before Christmas I
was contacted immediately and the ambulance arrived shortly afterwards,
one member of staff kindly drove my car to St Peters. I would add
that a follow up ‘phone call to see how we were would have
been appreciated, although when he went back to playscheme in Feb
holiday we were asked.”
2c) i) Do you feel you receive enough support from the staff?
Yes: 42
No: 2
2c)
ii) How would you rate the support you receive?
Excellent: 18
Very good: 19
Good: 6
Satisfactory: 1
Poor: 0
Comments
“Would like more updates and physio + speech and
language.”
“Not support as such, but they are all kind and helpful and
they were very good and took her overnight when it was my father’s
funeral last year and went out of their way to help. Thank you.”
“Some of the staff are more efficient than others and I have
experienced communication problems among staff.”
“Don’t really get support from Twinks Staff –
not what Twinks is about, so wouldn’t want them to spend time
supporting me/other parents – the Twinks staff are there for
the children!”
“Most relevant when they visit for care review. Not applicable
with other workers.”
“Excellent support to my son and myself.”
2d)
Have sensitive issues you have shared been handled in a confidential
manner?
N/A: 11
Yes: 34
No: 0
Comments
"So far haven't had ny."
2e) Do you believe that we keep your child safe?
Yes: 45
No: 0
Comments
“Reception
must challenge every visitor! Car park can be dangerous for disabled
children, need signs to remind drivers to slow down.”
“Except for unsafe door system – children cannot be
allowed to escape as they can easily get onto the road or other
dangers.”
“Couldn’t be happier leaving my child in their hands.”
“Most of the time – there have been a few issues with
my son, safety-wise, but hopefully are now resolved.”
“Have absolute confidence that safety is paramount.”
“Very much so!”
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3.
Activities and the Environment 3a)
Are the activities provided appropriate for your child?
Yes: 44
No: 1
Comments
“In the
whole.”
“Most of the time.”
“Although he has now outgrown the Club – moving to a
Teenage Group next term.”
“He likes being active so anything that keeps him busy is
good!”
“He needs activities more suited to him on holiday playschemes
as already discussed at meeting.”
“The staff make a big effort to ensure my son is involved
in the activities.”
“He needs continual support and direction.”
“Yes, though for a while I’ve been wondering if they
could be a little more stretching?”
“More time outside and in active skills eg jigsaws, ball play,
climbing equipment.”
“The activities that my helpers do with my son are organised
by myself.”
“He needs continual support and direction.”
3b) Which activities do you think your child has most enjoyed?
Comments
“Horse
riding and swimming.”
“Swimming.” x 2
“Sensory groups, swimming, playing.”
“Unsure, although I believe he likes going outside and swimming!!”
“Parachute, cooking, ball games.”
“Garden and outings.”
“The active activities and generally being in that environment
with attention from
someone working with her.”
“Going for walks, going to the playground, painting, cooking.”
Swimming, physical activities.”
“Push toys.”
“Top Golf, Ten Pin Bowling, Cinema, Companion Cycling.”
“Playground in the garden.”
“Books.”
“Walking to the duck pond, playing with door handles.”
“Going out on the train or looking at the buses.”
“Walks (Staines moor), Bedfont lakes, cinema, Thorpe Park.”
“She can’t speak, but they have taken her swimming and
to the park so I would say
most enjoyable would be swimming as she loves water!”
“Sensory room, swim, soft play.”
“Hydrotherapy, physiotherapy.”
“Loves walks etc, but favourite is swimming.”
“Climbing, swing, play with water.”
“All of them.”
“Outings and making things.”
“Ball pond indoor play centre.”
“She enjoys the variety on offer but especially swimming.”
“Going out and talking to the staff.”
“Trips to the farm, outings, anything with animals.”
“Anything energetic! He is not so keen on getting his hands
dirty, but I feel that with the right persuasion he will interact
more.”
“Playing outside, horse riding, going on the bus.”
“Gym Club.”
“Swimming, sensory room.”
“Horse riding / gym club / swimming.”
“Dressing up, swimming, sensory room.”
“Swimming and outings in general, especially theme parks.”
“Everything she does with her link carers/family.”
“Outings – more please! Cooking, swimming.”
“Swimming with domiciliary and snooker and the disco at playscheme.”
“Shakers.”
“Outside play area, books, noisy toys/musical toys.”
“Anything that involves his helpers.”
“Sensory room.”
3c)
Do you have any suggestions for other activities?
Yes:
24
No: 21
Suggestions
“Not all
children are offered horse riding, would be nice if they could do
something with animals i.e. grooming horses ….maybe White
Lodge could have a few pets that children could take turns to look
after?”
“More swimming.”
“Swimming.” x 4
“More days out.”
“More small projects, sticking pieces of paper onto objects
etc glupe etc.”
“More of the same!”
“Water play, ball pit (cheap blow up paddling pool), sand,
music cds.”
“Just carry on doing the great job that you are doing!!”
“Craft café to decorate pottery.”
“More outings to get her used to getting out and about and
interacting with other people.”
“Trampolining, badminton.”
“More basic cookery and simpler crafts such as clay fridge
magnets/badges, play doh and plasticine.”
“Activity fit/fun club looking into maybe brownies –
need to look into swimming, art and craft playschemes.”
“Bowling – trip out, computer with touch screen, [he]
would also enjoy going swimming more.”
“Horse riding.”
“A day trip.”
“Play more outside, make more use of the garden.”
“Group outings, picnics, swimming.”
“Would be lovely if less able children could join in horse
riding.”
“Horse riding and more trips to Thames Valley.”
“Outings – more please! They don’t have to be
‘big’, even small-scale outings are
enjoyed. However there used to be more, eg Birdworld, Wittering,
TVAP. She needs them more now she’s older but they seem to
be on the decline?”
“The playscheme activities are well thought out and balanced.”
“What about activity weekend – residential?”
“More youth groups.”
“(This does NOT apply to domiciliary) I would suggest that
the youth playscheme (at Shepperton) had more age appropriate and
more interesting off-site activities. Have tried this playscheme
a few times but although staff and venue very good, the activities
are not appropriate for my son’s needs.”
“Maybe swimming??? Or a day trip could be arranged.”
3d)
If the service takes place in an environment other than your home,
do you consider it is:
3d)
i) Suitable?
Yes: 42
No: 0
3d)
ii) Friendly and welcoming?
Yes: 42
No: 0
Comments
“I hate the doors!!”
“Ball place know my daughter by name.”
“Shepperton Youth Centre is an ideal facility within easy
reach.”
“Yes because I have organised it.”
“There is no wheelchair egress from the Treetops play room
and no way to isolate the immediate rear garden from the large garden.”
“For Little Stars the facilities at Treetops are a big improvement
on the previous room in the Children’s Centre eg there is
a soft play area, toy cupboard, carpeting, more space. We don’t
use the sensory room so much, but the soft play has partly taken
that place. Not so many people use the hydro either, but it is still
available. It is great to have a cot available.”
3e)
If staff come to your own home, are you satisfied that they are
sensitive to the ways of your family and home environment?
Not applicable: 28
Yes: 17
No: 0
Comments
“Do not come into our home.”
“Unable to use this service at present. Waiting for suitable
house adaptation.”
“Home visits from O.T. Emma absolutely brilliant. She is a
super professional. Anna, the Physio lady, brilliant too, would
like to see and hear from her more often.”
“Will be able to advise soon.”
“Only just started with Dom. Care and were very apprehensive
with having ‘a stranger’ in the house but it was heaven
being able to switch off for a few hours and totally trusting our
care worker.”
“Thank you to Michael who always takes his shoes off!!”
“No-one has come to the house.”
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4.
Planning and Paperwork
4a)
Do you receive all necessary information as and when you need it?
Yes: 40
No: 5
Comments
“Often
dates for holidays, shut downs, training days not informed clearly.”
“Most of the time.”
“As previously mentioned, I would like more of an update on
physio etc. It is a long time till a TAC meeting.”
“Apart from the respite dates as mentioned previously.”
“Allocation letters have been very late recently.”
“I think that all the information regarding the opening/closing,
changing of lunches,
holiday schemes and appointment within White Lodge should be put
in the “yellow book - sometimes single leaflets get lost.”
“Your paperwork is fine, not too much.”
4b) Is any paperwork you receive easy to follow and deal with?
Yes: 42
No: 3
Comments
“The report
we receive after “Team Around the Child” meetings seems
a bit excessive in terms of its format, but not very relevant and
practical.”
4c)
Do you consider that the ‘All About Me’ document is
reviewed and updated regularly?
Yes: 34
No: 10
Comments
“First time I saw this document was recently just before the
OFSTED inspection and phone numbers were wrong and other vital information.”
“Not sure when it was last updated.”
“When your child is part of various services there are a lot
of forms to fill in. It would be great if play places and schemes
could have one form to go to all places.”
“I have no idea. I think it should be down to parents to tell
the staff.”
“Not witnessed yet.”
“I don’t think so.”
“Only completed within the last two weeks, but great attention
given to detail, fast to post and regular telephone contact.”
“An excellent document. Describes our son exactly and saves
us having to repeat
everything a dozen times.”
“Have not had an update for some time.”
“Not sure about it.”
4d)
Have you seen the Statement of Purpose for the parts of the Children
and Young People’s Service you use?
Yes: 24
No: 17
Comments
“I think
so.” x 2
“Not sure, can’t remember.”
“Not sure, I don’t think so?”
“Maybe. Sorry I can’t remember.”
“Not sure.” x 3
“I don’t think so??”
“It would be nice to have a list of the names and addresses
an email addresses of all the children and parents names at the
nursery.”
“Probably.”
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5.
New Families
For families who have started to use white lodge centre within the
last year only:
5a) What was your first impression of White Lodge Centre?
Excellent: 4
Very good: 3
Good: 0
Satisfactory: 0
Poor: 0
5b) Did you have the opportunity to discuss information
at your own pace?
Yes: 7
No: 0
5c) Did you feel there was anything missing from this information?
Yes: 0
No: 7
5d) Is there anything we could have done to improve the
contact you first had with us?
Yes: 1
No: 5
Comments:
“Improved communication with Manor Mead re transport arrangements
to and from.”
“PECS symbol for Treetops would be great.”
“We‘re quite happy with the way it happened.”
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6.
Standards 6a)
Are you aware that the Nursery, Playschemes, Treetops, Family Link
and the Domiciliary Service are inspected regularly by the Commission
for Social Care Inspection and Ofsted?
Yes: 40
No: 3
6b)
i) Are you aware that, in addition to the White Lodge Centre Core
Standards, we have specific Service Standards?
Yes 29
No 13
6b)
ii) Have you seen the Children and Young People’s Service
Standards?
Yes 16
No 24
Comments
“I don’t
think so?”
“Can’t recall.”
“Not sure.” x 4
“Probably.”
6c)
Do you believe our performance matches our standards?
Yes: 32
No: 0
Comments
“Whatever
the standards are they match my standards.”
“Little bit disappointed on bringing my child on. Staff get
stuck on doing certain things in certain way.”
“Not sure.”
“You meet all your standards as far as I am concerned.”
6d)
If anything goes wrong, do you feel every effort is made to put
things right as quickly as possible?
Yes: 36
No: 1
Comments
“Need better communication between staff and physio and OT
and speech & Language Therapists.”
“Except for door – I am still not happy.”
“I have a lot of confidence in White Lodge.”
“But nothing major has ever gone wrong.”
“Yes – usually.”
“When respite broke down, he was offered a place at a Saturday
Club (Rockets)”
“Have made no complaints – could not comment.”
“Never gone wrong, but I know it would be handled excellently!”
“Although there has never been a problem I have absolute confidence
that White Lodge would act swiftly to remedy any.”
6e) Do you believe we always do what we say we will do?
Yes: 40
No: 1
Comments
“Not had
calls returned sometimes but that is understandable but can be annoying.”
“You try your utmost to and if it doesn’t happen it
is normally because it is out of your control.”
“Majority of the time. Communication breakdowns have resulted
in things not being
done sometimes.”
“Usually, it might take a litte time.”
6f)
Are you aware that White Lodge Centre has held the following awards
for some years and has been re-accredited with them during the past
18 months?
The Chartermark
Award – An award, open to all public sector organisations,
which sets standards to help everyone in our organisation focus
on and improve our service to people who use our services and promotes
continuous improvement.
Yes: 19
No: 22
The Investors
In People Award – An award which sets a standard giving a
framework for us to ensure staff have the right knowledge, skills
and motivation to work efficiently.
Yes: 23
No: 18
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7.
General
7a) i) Are you aware
of our website? It is www.whitelodgecentre.co.uk.
Yes: 35
No: 10
7a)
ii) How would you rate it?
Excellent:
7
Very good: 9
Good: 9
Satisfactory: 1
Poor: 0
Comments
“Will look at it!”
“No idea. I have never felt the need to refer to it”
“Haven’t used it yet. Only found out about it very recently.”
“Not looked yet.” x 4
“More information, like holiday schemes could be put on the
website (parent’s section is advisable)”
7b)
Are there any other ways in which we can support your family?
Yes: 18
No: 25
Comments
“More Makaton courses for parents and staff please.”
“More respite.”
“Only if I could get Domiciliary Funding.”
“More respite, preferably more nights. The chance to have
a weekend of respite would be amazing but seems like it is easier
to get blood out of a stone.”
“Domiciliary at Family Links or Rockets.”
“I would like to have more information about the services
that we can use.”
“Not sure.”
“Just wish the playschemes i.e. White Lodge Challengers and
Crossroads would liaise re summer play dates as most families have
the last two weeks of August without much help!!”
“By having a few more days respite a month would be very beneficial.”
“Private care but now set prices have been fixed instead of
donation it is far too expensive.”
“Is there any way my daughter could be given a 10 –
3 or later on a Saturday. She is home educated by us parents and
apart from Link Leisure in school holidays (plus obviously Jackie
2 hours Wednesdays), she is at home with me and the family (dad
and sister) all day and every day. I recently have found this exhausting,
especially since May my husband has spent 4 weeks on and off away
working abroad. He also works many weekends and does lots of overtime
at weekends as well. We have been offered a placement at a school
but because of her dependency and behavioural needs the school have
stated that a home/school link person who knows and works with her
at home is needed at school to re-integrate this, one will do. I
feel solely responsible at all times for her and a day just for
her sister and myself would be amazing.”
“We would like her to attend for overnight stays but I am
told no vacancies exist.”
“Everything you are doing is excellent.”
“Future planning re education and starting school.”
“Is there anything you could do to support siblings?”
“Would be nice to have a weekend club or after school club
at White Lodge where children know.”
“I’m concerned about what will happen when she is too
old for Twinks.”
“You are already doing a great job – thank you!”
“Regular residential activity weekend breaks?”
“Not at present, but more overnight at weekends!”
“Better youth schemes for teenagers and young adults with
autism 16+ with appropriate activities.”
“We’re very happy with the support we get as our daughter
isn’t too bad.”
7c)
With which of the following partners are you aware that we work?
Physical and Sensory Support Team: 21
Disability Challengers: 16
Educational Psychologists: 24
Redhill and Reigate YMCA: 1
Children with Disabilities Social Workers: 30
Crossroads: 10
Youth Service: 10
Local Volunteer Centres: 5
Link Leisure: 14
Portage: 16
Consultants: 16
Community Nurses: 16
Specialist and mainstream nurseries and schools: 15
Comments
“We only use your services for playscheme so are not aware
of your full service but
know you do a lot for children and adults – I believe.”
“Re Link Leisure – unfortunately does not apply to Runnymede,
I have asked but
understand that it is a pilot scheme at present, any additional
info greatly appreciated.”
7d)
Do you have any suggestions as to ways in which future audits can
be carried out?
Yes: 4
No: 37
Suggestions
“More confidentiality
needed so parents can be truthful.”
“Although this is another form it is quite easy.”
“Sorry, been thinking but brain dead.”
“Perhaps on line via your website?”
7e) Any further comments?
"As a lot
of the children cannot talk would be really nice if the staff could
be available for few questions at the end/or beginning of the day.
Parents often feel unease to approach very busy looking staff as
not many of them present."
"If staff notice a problem i.e. with potty, they should speak
to physio or O.T. person about it and make sure it is dealt with
and inform parent."
"There is a lack of communication between different departments,
should get together and work together."
"Staff should be braver in challenging the children, perhaps
working more closely with physio and with parents, not get stuck
doing things the same way."
"Parents have noticed that the staff is not as enthusiastic
and happy as they used to be and that is a real shame, as they are
all great people, maybe they feel under-staffed, under pressure?
Or just in need of a summer holiday.”
“Always
a good service from you prior to schemes and during.”
“Would
it not be more appropriate to have confirmed 6 weekly appointments
to see Andrew Tagg if your child has CP or requires special shoes/splints.
It would take the stress out of wondering whether you are trying
to squeeze your child’s foot in a splint for example too small
for them. One last thing… overall we are incredibly grateful
[he] has a place at White Lodge. The staff are incredibly helpful
and kind and my son obviously loves it which is the main and most
important thing at the end of the day. My thanks to Lesley and her
team for helping my boy so very much.”
“Just
so grateful for the services provided – reliable, professional
, and most important thing, fun for [him] and suited to his needs.
The staff go way beyond the call of duty, have endless patience
and a great sense of humour. They give us the little breaks that
we need as a family. Thank you!”
“I am
very appreciative of the support I have received from the domiciliary
service and the care that has been shown both to us and parents
and B.”
“We have
only just started using the domiciliary service from White Lodge
in the past few weeks but so far it has met our daughter’s
needs and is working well!”
“A valuable
service which has kept our family together.”
We live outside
Surrey on the border, in our own County we would have had to share
physio sessions etc, we contacted White Lodge Centre, there is much
more available and we are very grateful”
“I have
always been very happy with the service given. The one suggestion
I would have is that as there have been a lot of new staff joining
Treetops I don’t know a lot of them. It would be great if
you could send us a picture of new staff and their name so we would
know who was taking care of our children. Many children arrive on
transport and therefore parents do not actually visit Treetops that
much. I was also surprised to see that Comets has gone up to £12
– I think this should have been brought to our attention before
the booking forms were competed as this increase equates to another
£20 for the summer holidays. I save £4 every week to
cover the cost of Comets so I will now not have enough money. I
also know of one other parent who has said she won’t be able
to send her child on all the booked days now because of the cost
rise. My son loves going to Treetops and I would like to take this
opportunity to thank you for providing this service as I am sure
there are many other parents who like myself rely on Treetops to
help maintain our sanity.”
“it is
such a shame that the provision ends at the age of 12. It would
be lovely if it went through to the age of 18.”
“As noted
earlier I can only at the current time give my feedback for holiday
playscheme, upon my visit to Treetops I would like to advise that
I was very impressed with Matthew and all the other staff were very
friendly and helpful. Treetops is very clean and a wonderful enriched
environment which I am sure that [he] will enjoy in the very near
future. On a low note – [he] was diagnosed with ASD at White
Lode, we as a family found the whole procedure dreadful, with very
little sensitivity, and information being given to us. I understand
and see that things are greatly improving which is very promising.”
“Excellent
centre, can’t praise the staff enough. Don’t give just
our son the best future possible but totally support myself and
my husband. Staff are always ready to listen and give advice where
appropriate. Only wish you had school provision after Nursery. Thank
you.”
“I cannot
fault the help we get for our son, he is always happy to come to
Twinks 2.”
“Have
Twinks and Twinks II merged? I thought the point of Twinks II was
so that older children would be together, making it possible to
keep age-appropriate activities/outings for the children. They seem
to be mixed again, which must surely limit what can be done? Very
grateful to have Twinks – we have the perfect amount, and
it is great for us! Family Link is just FANTASTIC!”
“It isn’t
just the fact that [he] enjoys each and every one of the services
to which he is entitled, nor that these give his sister and me such
a welcome break, it is that I can relax knowing that he is being
cared for by people who have his best interests at heart and in
whom I have complete confidence. Thank you to everyone.”
“Have
used family link for several years – but for about 2 years
have no one that can match our two teenage boys.”
“Having
regular meetings face to face with working party of parents who
use White Lodge and whose children have a wide range of disabilities
and use a range of activities. I have filled this form in regarding
the domiciliary service only – I cannot fault the domiciliary
service my son receives, or the level of care he receives from his
wonderful team of helpers. They are my son’s friends and my
lifeline and they enable us to continue coping as a family. I cannot
thank Mary and Helen and co enough. We have tried the youth scheme
a few times (with a helper) which was not very successful due to
the activities not being appropriate for many children with autism.
I feel a lot more could be done with this, with a lot more planning
of more outings such as Disability Challengers youth scheme, which
has much more appropriate and realistic activities. We need much
more activities for young adults with autism and complex needs etc
that are 16+. The playscheme at Shepperton is a lovely venue and
group of people, but all activities are on site. It would be good
to have a mix of quiet days on site and active days off site, we
recognise that there are young people with other disabilities there
too, but those with autism need an outing most days. I am not the
only parent who thinks that. There is great potential for the playschemes
if we go along the lines of Disability Challengers. I would happily
pay for such outings and would also do fundraising to enable them
to go ahead. Suggested additional activities include: Donutting,
bowling at the Big Apple, Pizza Hut, fruit picking, trampolining,
the BA Experience, golf driving range, sailing and canoeing at Thames
Young Mariners, other water type activities, travelling on a train,
Watercress Line, picnic at Bushy Park, Woking Leisure Centre, going
to the pub.”
“A brilliant
place, children perfectly looked after, all their needs are met
and Treetops home book is very well done. Very helpful, especially
the children’s participation activities, which are well planned,
very much ability orientated. Food’s good! My child always
says she has had a good time when picked up, she loves helping the
staff, we have never had a problem”.
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